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I had my transplant 347 days ago. Transplant was easy. 4 days for TBI and chemo pre-transplant and a week in hospital post transplant. 3 months in apartment near hospital. I started with 7 per week checkups that tapered to twice a week. Up to that point everything was easy. I attribute that to be in good physical condition and staying very active.
At day 100, the dividing line between acute and chronic GVHD it hit with a vengeance. I came down with c.diff, CMV and grade 3/4 GVHD. I spent 2 months in the hospital with out eating. They thought I was going to die. Due to reserve strength I made it through. Now I am in good shape again. 2 weeks ago I was taken off the last of my transplant medications and am suffering somewhat from prednisone withdrawal and some GVHD. In 3 weeks I go for my first re-birthday checkup.
Stay strong and exercise as much as possible. Everyone is different. I wish you the best success with your transplant.
Ray
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