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Thanks everyone for sharing their experiences, tips and information sources. Looks like my transplant date will be in mid July - my brother is a match but has some health issues and still needs to be cleared. I'm trying to stay focussed on a cure down the road - and hopefully not too many bumps in the road, although that is probably wishful thinking. I am very tired of being tired and needing blood transfusions. I feel good about my doctors and hope those also awaiting transplant do too - and we all have some good stories to share with very happy endings.
Best to all.
Paul
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Lower risk MDS diagnosed 2012. Recurring skin nodules treated with prednisone, otherwise watch and wait. HG dropped from 11.5 to 8.7. Kept going down to 5. Vidaza didn't work. BMT from MUD on September 10 2015
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