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I would call the docs office this morning and tell them of your symptoms. Your HGb may have dropped and if that is the case, you may need red cells. If so, all of your blood products need to be filtered/leucocyte reduced and irradiated. You should also be tested to see if you are CMV negative or positive. CMV is a virus most have had and if you have not had it, you want your blood products to be CMV negative. The filtering of blood products usually will eliminate it but they should always request CMV negative for you if that is the case.
You comments about not being iron deficient and then getting iron infusion is confusing. If it's just your red cells, I assume they checked for b12, folate, B6 and copper as well as iron. Request the actual lab report of your results. Your B12 needs to be at least 500 especially in the presence of anemia.
Finally, what is platelet count and ANC. You need to track those two numbers also.
But first, address your symptoms with your doc and don't wait for your next appt. And then you really need to see someone who has experience with SAA. They need to rule out genetic diseases and should also check for PNH. PNH affects the red cell line and can co-exist with SAA.
Marlene
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Marlene, wife to John DX w/SAA April 2002, Stable partial remission; Treated with High Dose Cytoxan, Johns Hopkins, June 2002. Final phlebotomy 11/2016. As of July 2021 HGB 12.0, WBC 4.70/ANC 3.85, Plts 110K.
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