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Old Thu Jun 30, 2011, 08:49 PM
mscrzy1 mscrzy1 is offline
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Join Date: Jan 2011
Location: California
Posts: 103
Honestly, that fear never completely goes away. It does discipate a little, though. I found that the best way to deal with those little freak outs is to have a quick test you can do for yourself to check your counts. Look for petichia around your ankles. Look at the creases in your hand to determine how quickly they turn red. Ask your hematologist for little things like that you cab look for to quickly assess your health and alleviate that initial fear. :-)
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Angie

36 yr. old, dx SAA in Jan 1996, treated with ATG in Mar. 1996, off cyclosporine Sept. 1996, last blood transfusion in Aug. 1997, slow decline in counts again November 2010, AA and current count decline thought to be caused by lupus, currently taking 400mg Plaquinil
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