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For Gloria
Hi Gloria, just want to say I have AA and PNH too. I'm on Soliris too and PNH has been may main concern since Prednisone raised my plts from 24 to 150. Prednisone messed up my bones, bad osteoporosis, so went off it.
Platelets have been slowly falling for 2 years but still ok at 88. ANC varies from low of .6 to 1.5. Had kidney failure from hemolytic crisis, now much better. Cyclo and history of kidneys issues not a good mix though.
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AA/PNH Dx 1998, Warfarin, Soliris
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