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Old Mon Aug 20, 2012, 06:00 PM
Al's Wife Al's Wife is offline
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Join Date: Jun 2010
Location: Jackson, Georgia USA
Posts: 205
Any suggestions for cough?

We've had a rough weekend. Last night I wasn't sure Al was going to make it through the night and was very worried. His condition has deteriorated so much in just the last week that it is unbelievable. He has developed a really terrible cough and after reading online, this is consistent with AML diagnosis. His x-ray was clear and the doctor said his lungs are clear. This coughing is wearing him down. I've tried everything I can think of - Robitussin cough syrups, home remedies and nothing has helped. Does anyone have any suggestions?
They are trying to get the Decitabine set up but we haven't gotten anything certain yet other than "We're working on it."

Beth, you are truly an angel on this forum. The oxygen info has been invaluable and no one explained anything the way you did.

We are totally exhausted and when I get a better grip on myself I will post more. I can't thank all of you enough for the prayers, love, support and hugs coming our way.

This is so much harder than I could have ever imagined to see him in this shape and to lose his quality of life almost overnight. But I'm still hoping for the miracle.

I'm still having a terrible time keeping my emotions together. I'm trying to be strong for him but can't seem to keep it together and I'm disappointed for that. He needs me to be strong. I've called my doctor to ask him for something very mild to keep me from breaking down all the time, if there is such a pill.

Please continue to pray for us and if anyone has any suggestions about the cough I would be so grateful.

Thanks,
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Linda, Al's wife, 75; dx MDS 5/2010; Vidaza 6/2010; ARRY614 & Sapacitabine clinical trials at Emory, no results, stopped 12/2011. Had BMB at NIH on 6/5/12, blasts 10-15% so he's not eligible for trial there. :eek Promacta trial, Tampa, blasts 25-30% 8/17/12 AML, trying Dacogen now and praying.
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