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Old Tue Oct 14, 2014, 04:02 PM
Marlene Marlene is offline
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Join Date: Oct 2006
Location: Springfield, VA
Posts: 1,406
When John was being treated at Johns Hopkins in 2002, there was a 16 year old girl getting a BMT for SAA caused by her epilepsy meds. Sorry I don't know what she was on, but to them, it was clear that it was the medicine that caused her SAA.

You can be on any med without problems for a long time and then all of sudden, you start having problems. And some things take longer to manifest.

I hope you can try other medications and get the SAA under control again.
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Marlene, wife to John DX w/SAA April 2002, Stable partial remission; Treated with High Dose Cytoxan, Johns Hopkins, June 2002. Final phlebotomy 11/2016. As of July 2021 HGB 12.0, WBC 4.70/ANC 3.85, Plts 110K.
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