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John's doctor has treated many SAA patients. He was also at NIH prior to joining Hopkins. We felt Hopkins was a good match for us as was his DR.
The one thing I feel strongly about is that it is important to have a doctor experienced with these rare diseases. If that's not possible, then the doctor should be in contact with them.
In the Northeast/Mid Atlantic area, Dr. Brodsky at Hopkins, Dr. Neil Young at NIH and Dr. Maciejewski at the Cleveland Clinic all have good reputations in the SAA world. There may be a few more but I can't recall at this point. Other may be able to suggest some.
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Marlene, wife to John DX w/SAA April 2002, Stable partial remission; Treated with High Dose Cytoxan, Johns Hopkins, June 2002. Final phlebotomy 11/2016. As of July 2021 HGB 12.0, WBC 4.70/ANC 3.85, Plts 110K.
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