Hi chic88,
Since you are new to AA, I would suggest checking out the Aplastic Anemia and Myelodysplasia International Foundation website (if you haven't already) at:
http://www.aamds.org
They are a fantastic resource for information and support.
They have a bunch of on-line video presentations by leading experts across the country that can help you come up to speed on the basics [and beyond] of this disease. Here is the link to the ones on AA:
https://www.pathlms.com/aamdsif/categories/300/courses
They also have a support line that can help you find specialists in your area.
As Marlene said, it is critical that you get a second opinion by an expert in this rare disease! You can call the research nurses (Olga R. or Barbara W.) at the National Institute of Health (NIH) to explain the situation and see if your boyfriend could get a consult at NIH. Treatment there is free. Here is a link to NIH that lists the phone numbers/email for Olga and Barbara:
http://www.nhlbi.nih.gov/research/in.../research-team
Good luck!