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Hi sheribaby,
You can't make an MDS diagnosis without a bone marrow biopsy. So, you will have to do it. It isn't that bad and is over quick. You can ask for sedation if you are really scared.
Many things can mimic MDS, like a vitamin or mineral deficiency. So it is important that your doctor runs a bunch of other blood tests to rule these out as well.
If you do have MDS, the results of the bone marrow biopsy will help your doctor define your treatment regimen, which could ultimately extend your life and the quality of that life.
Now's the time to be strong!
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55 yo female, dx 9/08, AA/hypo-MDS, subclinical PNH, ATG/CsA 12/08, partial response. small trisomy 6 clone, low-dose cyclosporine dependent
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