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Old Fri Nov 1, 2013, 07:20 PM
triumphe64 triumphe64 is offline
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Join Date: Feb 2008
Location: Dallas, Texas
Posts: 455
Quote:
Originally Posted by k8samp View Post
If we don't strongly advocate for our own health and well- being, who will?? I'm rather proactive as a nurse and will do everything in my power to regain my prior quality of life because this fatigue is just not a long term option.
Dr. M likes to get an extra tube of blood to study for research. This helps all of us current and future patients.

His fellow told me that there is currently a researcher from Japan working in his lab who is doing research on PRCA.
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Dallas, Texas - Age 81 - Pure Red Cell Aplasia began March 2005 - Tried IVIG - Then cyclosporine and prednisone. Then Danazol, was added. Then only Danazol . HG reached 16.3 March 2015. Taken off all meds. Facebook PRCA group https://www.facebook.com/groups/PureRedCellAplasia/
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