Tue Dec 30, 2014, 06:33 PM
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Member
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Join Date: Feb 2008
Location: Dallas, Texas
Posts: 455
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Quote:
Originally Posted by Neil Cuadra
Pranesh,
Pure red cell aplasia that is acquired (not present at birth) is commonly treatable, especially if it was the result of a viral infection or a side effect of medications. Congenital PRCA (present at birth) has a less good prognosis.
Your son's doctor is proceeding carefully, which is sensible. Drug treatments may be all that's required. However, if a bone marrow transplant proves necessary, and a suitable matched donor is located, then it's worth knowing that children do very well with transplants. There is always a risk, but transplant success rates are excellent for children and in many ways it's a harder experience for parents than the young patient, since parents do all the worrying.
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If it is from Parvovirus, then it is common to give IVIG. But I am not sure IVIG is common for such a young patient.
Keep us informed.
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Dallas, Texas - Age 81 - Pure Red Cell Aplasia began March 2005 - Tried IVIG - Then cyclosporine and prednisone. Then Danazol, was added. Then only Danazol . HG reached 16.3 March 2015. Taken off all meds. Facebook PRCA group https://www.facebook.com/groups/PureRedCellAplasia/
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