Thread: Exjade
View Single Post
  #1  
Old Tue Feb 9, 2016, 07:32 PM
truthlover truthlover is offline
Member
 
Join Date: Jul 2013
Location: Saint-Jean-sur-Richelieu, QC, Canada
Posts: 25
Exjade

Hi everyone

Things are going well with the treatment of the cGVHD and I am now down to moderate level. It is now time to treat the iron overload. We tried phlebotomies but that isn't going to work for me - bad veins. So it looks like I'll be taking Exjade. My main concern is damage to my vision since I have limited vision already. My ferretin level is very high so I imagine I'll be on it for a long while. I am usually in the small percentage of people who have rare side-effects. How concerned should I be?

Michelle
__________________
Michelle -- Diagnosed APL (M3) August 2010 - in remission. Diagnosed MDS RAEB Type II and AML (M6) July 2013. Allogenic SCT Oct. 11, 2013.
Saint-Jean-sur-Richelieu, Québec, Canada.
Reply With Quote