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Old Tue Apr 17, 2012, 11:29 PM
dfantle dfantle is offline
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Join Date: Jan 2012
Location: bellevue, wa
Posts: 150
From what I understand the dose is based on weight AND blood levels. My doc wants the levels in my blood to be around 200 ( can't recall the measurement, just the #). I'm just 2-1/2 weeks post horse ATG and started off taking 700 mg/daily. It's been a bit challenging to not be higher than the 200 level so she's gradually reduced my daily intake and I'm now at 650mg/ daily. Depending on my counts tomorrow, the daily intake may change again. I think there may be different schools of thought on the levels different docs want you to maintain. Mine has a ton of experience with AA and so I trust her judgement, but of course would rather take less if I could.
( my weight is 130 & I'm 5'8)

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Dena
Age 54; DX Heavy Chain (AH) Amyloidosis 6/10; AutoSCT 3/11; Amyloidosis remission 6/11; DX SAA 7/11; Horse ATG 3/12; Mini MUD SCT 1/13; Recovered from SAA 5/13 & feeling great
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