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Old Tue Jun 5, 2012, 01:17 AM
dfantle dfantle is offline
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Join Date: Jan 2012
Location: bellevue, wa
Posts: 150
Yes, my understanding is prednisone is just to prevent serum sickness.

The NIH definitely does the standard treatments but also has studies for patients who have relapsed. The big advantage would be they are very experienced with AA, will definitely dose you correctly, and your only costs will be travel to and from and housing. All medical expenses are completely covered while there. The disadvantage is having to stay there for a period of time they set for you if you opt to do treatment there. But once they see you they also may decide to guide your treatment where you live.

Excuse typos, sent from my cell phones
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Dena
Age 54; DX Heavy Chain (AH) Amyloidosis 6/10; AutoSCT 3/11; Amyloidosis remission 6/11; DX SAA 7/11; Horse ATG 3/12; Mini MUD SCT 1/13; Recovered from SAA 5/13 & feeling great
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