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Old Sun Nov 20, 2016, 03:22 PM
Rusty Rusty is offline
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Join Date: Nov 2016
Location: Brisbane, Australia
Posts: 2
Thanks Lisa and Bailie.
The doctors gave me three options
1. Do nothing - watch and wait
2. Start Azacitidine to put the condition on hold temporarily, or
3. Start chemo asap and look for a donor just incase the chemo doesn't put a stop to it. (I have a younger brother and sister as possibilities)

However, the last thing I want to try is SCT as this is what finished my mum off some 10 years ago when she went though the same/similar thing which eventuated into AML. I'm not sure what went wrong, but she only lasted about 10 days after the SCT and passed away at 68 after 2.5 years of battling with it.
The doctors tell me its unlikely to be hereditary, but they are checking.
I have all my tests filed and will keep this up for the journey.
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Ankylosing Spondilitis since 1990
Dx Pancytopenia - October 2016
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