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Old Tue Dec 13, 2016, 05:01 PM
KatailS KatailS is offline
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Join Date: Apr 2016
Location: Avon, CT
Posts: 41
David, I am glad to hear you are also 'hanging in there' and that you are staying strong and as healthy as you can. I have learned to listen to my body more at the gym.... I push myself, but I also don't push too hard. Life is a delicate balance...

Yes bailie, it does seem as if everyone has such a different journey. I feel very fortunate that my numbers are fairly steady, .... low, but not an immediate problem.... and I have great doctors keeping a close eye on me. I hope you are doing well.

Cheryl, I agree, watching and waiting is good, but it certainly does add a bit of anxiety to life. I find it very hard to go in for the bloodwork and feel very hopeful that the numbers may be better only to find they are slightly lower. It can be frustrating.... but I'll take it because I know they could be so much worse.
I hope you are doing well :-)
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Kathie - 54 yr old mother of 4, pancytopenia since 11/2014, moderate AA 8/2016, small PNH clone (now increasing), monitor bloodwork every three months
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