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Hi Hispit,
I have moderate AA now, and have had 2 transfusions due to shortness of breath. I am at work right now having shortness of breath (even after my 2nd transfusion Tuesday). I have been debating this same thing you are talking about, and actually posted a thread recently. I guess it all boils down to how much you can handle, and still take care of yourself. I am having to return to full time work due to finances, but if I can't handle it, I will go back to part time, and if I can't handle that, then guess it will be disability for me. I also work 12 hour shifts (7pm-7am), and that is really rough on our bodies...I hope you find a happy medium. Keep me updated, Linda
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Linda, 47 yo, married, mother of a teen, moderate AA w/ TERC mutation (2007 NIH), Pulmonary Fibrosis 2010, was on Danazol study (Aug 2011-2013 & restarted 9/14/15), last transfusion May 2011. On Promacta now. Needing a double lung and stem cell transplant.
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