Quote:
Originally Posted by Charo
Hi, when I first had low blood counts, I found it hard to keep track of things. There is so much new and unfamiliar information. Having a dedicated calendar or notebook where you write down questions as you think of them and keep notes of what the doctor says might help. Someone recommended that to me and I relied a lot on it during the early months. The reading at the National institute of Health website nih.gov is good. And, there are good treatment options out there!
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That's great advice! I'm used to tracking meds/seizures for my daughter with epilepsy, so I will set up a similar notebook for myself! Thank you.
I can't really think about treatment options until we have a better handle on what's going on! Hopefully tomorrow's bone marrow biopsy yields some information in which case I'll have more info by Thursday.