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Hi Ruth-
My mom has a mixed MDS/AA diagnosis and also has unexplained chronic pain. Her neurologist performed an MRI of her brain and neck to see if he could determine a reason for the pain she is in. The MRI came back and he said he had never seen anything like it before. He noted "a lot of bone marrow activity" and recommended full bone scans as well, but he is deferring to her hematologist. I called her hematologist about this and he said, "We don't usually do MRIs of people with MDS." So, I started searching around the internet and found that some doctors found MRIs to be clinically significant in evaluating treatment and diagnosis. I hoped that maybe someone on this site might have experience with this so that I could bring it up in conversation with him.
Thanks,
Amy
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