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Old Wed Nov 20, 2019, 01:47 PM
bobspez bobspez is offline
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Join Date: Jul 2017
Location: Southern New Jersey, USA
Posts: 13
Vicki, how are you doing? I'm presently 3 years post diagnosis. Still on watch and wait. Blood counts still in the same ranges, high on monos, wbc and platelets, OK on RBC and Hgb.
Quote:
Originally Posted by vickinish View Post
Odd that you should post now just when I have had changes. My platelets dropped below normal in the past two months so we stopped the hydroxyurea. They are continuing to drop off the drug. Still at 130 but I’m not happy. If this continues a bone marrow biopsy is the next step. Possibly the diagnosis has changed. We’ll see over the next few months.

Very glad to hear that you are stable. Remember, I am 13 years post diagnosis so there can be a long time without changes. I’ll let you know what happens with me.
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Age 73. April 2016 diagnosed with SMZL (splenic marginal zone b-cell lymphoma). In remission after 8 weekly infusions of Rituxan. Got 4 more weekly Rituxan infusions in Jan., 2019. Sept 2016 diagnosed with CMML-1. Presently on watch and wait.
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