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Good luck with the Exjade! I had a lot of concerns when my husband went on it, but he sailed through without any noticeable side effects. He weighs 160 lbs, started at a dose of 500mg, and gradually increased to 750mg and now 1000mg. His ferritin level is holding somewhere around 1300 now. His creatinine level is a little elevated now, so we're keeping a watch on that.
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Catherine, wife of Bruce age 75; diagnosed 6/10/11 with macrocytic anemia, neutropenia and mild thrombocytopenia; BMB suggesting emerging MDS. Copper deficient. Currently receiving procrit and neuopogen injections weekly, B12 dermal cream and injections, Transfusions ~ 5 weeks.
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