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Old Tue Aug 6, 2013, 05:14 PM
LizR LizR is offline
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Join Date: May 2013
Location: Las Vegas, NV
Posts: 35
Thanks so much for the great information! It's what we needed and definitely not something you can read just anywhere. That is a LOT of desferal but it did what it was supposed to do. His kidneys are good now so we have a little margin for treatment.

As you said, there seems to be a lot of debate over what treatment is needed. We see our Mayo Clinic Dr., an MDS specialist, toward the end of the month and we'll see what he says. He oversees the treatment plan for our local Dr. to administer and they don't always agree either.

Bob is still up in the air about transplant so we just want to do the right thing for now. We get new results next week so that will hopefully give us some direction.

Thanks again for the info and your good wishes. Please keep us in mind if you think of anything else. These posts are like a flashlight in the dark!

I hope you continue to do well!
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Liz, wife of Bob (64) dx 11/2012 RAEB II now 15% blasts rare t(1;3)(p36.3q21) Vidaza, Aranesp, Exjade
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