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Old Wed Aug 21, 2013, 03:06 PM
LizR LizR is offline
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Join Date: May 2013
Location: Las Vegas, NV
Posts: 35
More questions

I asked earlier about chelation and the different amounts of treatment and attitudes doctors have about it. Bob is now doing a day of chelation (1000) every week but his local dr. said we could try exjade if our insurance will cover it. I thought exjade wasn't used for high-risk MDS? We will see our Mayo Clinic dr. next week and ask as well.

Another issue is Bob has no spleen and that is where iron usually goes first. He had it removed 30 years ago due to an an unexplained rupture. His latest BMB (a separate post to follow later) showed ringed sideroblasts that weren't there before. Since sideroblasts have iron in them, could lack of chelation be the cause?
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Liz, wife of Bob (64) dx 11/2012 RAEB II now 15% blasts rare t(1;3)(p36.3q21) Vidaza, Aranesp, Exjade
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