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Hi RAR,
We've talked before. Im in Portland with Ballie.
Doing same but added Lotemax and suffer same symptoms as you but not improving.
Mine have been about 5 months with these eyes. Here's a reply from another BMT brother in Portland.
"Your dry eye symptoms sound a lot like Gordon's. I think OHSU made him tears from his plasma that helped. He recently got contact lenses that cover the rough surface of his eyes. He says they really help. I hope you reach out to him. I am sure he will be able to tell you more and it might help you get more relief."
Man,it's really limiting and takes so much of my awareness just managing my eyes. I have other GVHD but not this disabling.
JOHN
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John, 68, Portland, Or. Dx with CMML on 12/1/2013, 3 days before admission for SCT, blasts went to 23%, AML. Did 7+3 chemo regimen. The chemo worked and blasts are 1% and did BMT on 1/1/15.- 12/2/15, ongoing GVHD in eyes. Lung fungus and Bronchiolitis Obliterans (BO).
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