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Good reminder
Hi Cheryl,
I'd like to add to your post by suggesting everyone get the basic nutrients checked at the very beginning in the diagnostic work up. Baselines are good to have and as you go through treatment too. Treatments will impact your nutritional status and they are not usually monitored once you are on a protocol. We've seen in some cases where nutrition was either overlooked or just not checked.
There have been studies showing that correcting low copper, low-normal B12 and h.pylori bacteria infection has reversed some cases of MDS. So it makes sense to get them checked out.
At the minimum, get your B12, folate, copper, zinc, iron and Vitamin D. Checking your MMA and homocysteine will help further identify issues with B12 and folate utilization.
Thanks for the reminder.
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Marlene, wife to John DX w/SAA April 2002, Stable partial remission; Treated with High Dose Cytoxan, Johns Hopkins, June 2002. Final phlebotomy 11/2016. As of July 2021 HGB 12.0, WBC 4.70/ANC 3.85, Plts 110K.
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