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Old Fri Feb 1, 2019, 10:31 AM
jamesramilo jamesramilo is offline
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Join Date: Jan 2019
Location: UAE
Posts: 3
Diagnosed with PNH after 8 Years

Hi Guys! My name is James and im from the Philippines age 33 going 34 this March. I was just recently diagnosed with PNH last Dec 6 2018 my previous diagnosis was Iron Deficiency Anemia and AIHA (idiopathic). Im currently being treated with Soliris in UAE (Abu Dhabi). To tell you the truth im pretty scared of whats currently happening before my hemoglobin is low (7.1 - 7.6) platelets is normal and WBC is normal. But now with my most recent lab test platelets is at 116 and WBC is 3.8 i asked one of my doctor about this and i was just given a vague answer. Hope you guys can share your thought and experiences. Thank you and Godbless!
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