View Single Post
  #14  
Old Sun Oct 30, 2022, 01:52 PM
Hopeful Hopeful is offline
Member
 
Join Date: Jan 2009
Location: California, USA
Posts: 766
Hi PKumar and Matthew42,

I listened to a very interesting presentation by Dr Taha Bat entitled "Aplastic Anemia and Non-Transplant Therapies".

There is a Q&A session at the end where the doctor passionately talks about the importance of trying different strategies if transfusion dependent and not just waiting on the sidelines. For example, he mentions considering the use of N-Plate for refectory AA that is not responding to the traditional IST approach.

Also, he encourages patients to email him if they need direction in their treatment strategy based on his experience and research.

You can watch the presentation here:
https://www.aamds.org/webinar/aplast...lant-therapies

PKumar - It is encouraging that your wife's blood counts are sticking! I hope the changes made continue to have a positive impact.

Prednisone can cause a false rise in WBC, so just be wary for this blood line.
__________________
55 yo female, dx 9/08, AA/hypo-MDS, subclinical PNH, ATG/CsA 12/08, partial response. small trisomy 6 clone, low-dose cyclosporine dependent
Reply With Quote