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Old Thu Oct 4, 2012, 10:38 AM
Hopeful Hopeful is offline
Join Date: Jan 2009
Location: California, USA
Posts: 713
Why MDS?

Hi Teo,

How old is your mom? How long did she take cyclosporine? Why do her doctors give her an MDS diagnosis? I didn't see any reason for this diagnosis based on the BMB report that you attached. Were her cytogenetics normal?

Did she have an illness in June that resulted in her lower counts and possibly caused you to question whether the cyclosporine was helping/hurting? How frequently is she getting RBC transfusions now and what is her HGB level before she gets them?
52 yo female, dx 9/08, AA/hypo-MDS, subclinical PNH, ATG/CsA 12/08, partial response. Tried slow cyclosporine taper over 4+ years. Platelets fell, so back on cyclosporine. Trisomy 6 clone in 5% of cells.
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