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Old Tue Feb 10, 2015, 05:45 AM
Cheryl C Cheryl C is offline
Join Date: Dec 2011
Location: Lake Macquarie, Australia
Posts: 827
I used to get the shaky, jittery feeling a lot, especially towards the end of the day. I also often felt generally unwell. All of these symptoms improved heaps when my blast count dropped. At the same time I also started the gamma globulin infusions. My haematologist thought the shakiness and unwellness was due to my body fighting infections - even though I wasn't aware of anything specific. Now these feelings are just occasional. I used to force myself to exercise (walk) in spite of the shaky legs, and by the time I finished a walk it was often gone.
Dx MDS RAEB 10% blasts + hypogammaglobulinemia, Sep 2011. Jan 2012 BMB - blasts down to 2% w/out treatment so BMT cancelled. Re-diagnosis RCMD. On watch and wait since Feb 2012. IVIg 5-weekly. BMB Feb 2014 - no blast transformation. 2018 still stable.
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