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Old Sat Apr 19, 2014, 02:32 PM
triumphe64 triumphe64 is offline
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Join Date: Feb 2008
Location: Dallas, Texas
Posts: 455
Dr. Maciejewski told me that Danazol is an anabolic steroid. The added muscle it builds stimulates the need for more red cells.

I have been taking it for about five years. A year ago my Hg reached the bottom of the normal range, and I finished the taper of the cyclosporine and prednisone in October. My Hg was 16 on March 12. It had been 14.8 a month earlier. Dr. M. indicated I may no longer need it, but the dose I take (200mg) is small and I should continue for now. I see my local doctor on Tuesday, so I will ask her what she thinks. I understand there are 100mg pills available.
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Dallas, Texas - Age 81 - Pure Red Cell Aplasia began March 2005 - Tried IVIG - Then cyclosporine and prednisone. Then Danazol, was added. Then only Danazol . HG reached 16.3 March 2015. Taken off all meds. Facebook PRCA group https://www.facebook.com/groups/PureRedCellAplasia/
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