View Single Post
  #4  
Old Mon Mar 31, 2008, 11:00 AM
sandra sandra is offline
Member
 
Join Date: Mar 2007
Posts: 35
Neupogen

Actually, I would not be too worried about Neupogen. This treatment is controversial, many AA specialists (including Dr. Shimamura) shy away from it except in cases of ongoing overwhelming infections. There are quite a bit of articles that point to increased risk of secondary malignancy (MDS or AML) with prolonged use.

From your description your daughter seems to be doing well. If I were you, I would concentrate my energy for securing enough cyclosporine. That is also an expensive drug, and she might need it for quite a while. If she does very well and platelets go to about 100k or over, you can consider tapering cyclosporine very slowly (8 - 10% every month).

Cyclosporine (Neoral) is made by Novartis, I read somewhere that the company itself has some form of assistance program, you might need to dig through their website.

All the best to Haylee,
Sandra
Reply With Quote