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Deb
Is your doctor far from where you live? Is Sunnybrook far from you? If so, you should have a local hematologist or oncologist looking out for you. I had my original treatment at NIH and I live in Ga. I had a local oncologist that basically just did cbc's on me. When I recently relapsed he didn't know what to do with me (he said there wasnt any other treatment available for me) so I went on the internet and knew better - that is how I found my current oncologist and I just love the practice. They wanted to see me the day I contacted them. Cheer up - things will get better, but I do fully believe we have to be proactive in our treatments. I would let your local doctor know how you are feeling. If you dont have a local doctor I would get one to help you out. Where do you live?
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Susan Patient, 58, MDS, UPDATED 9/13
Now have RAEB-2, Firbrosis 3+, blasts 18% peripheral, 10 - 14% blasts marrow, chromosomes now T 1:21, trisonomy 16 and 1.- Match found ---10/10 -couldn't believe when I heard - Tentative day is 1/09th!!!! Admit date changed to 11/12. WOW -
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