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Old Tue Oct 20, 2015, 06:30 PM
GoodDay5150 GoodDay5150 is offline
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Join Date: Sep 2014
Location: Centennial, CO
Posts: 150
Hi Myra. My PNH greatly impacted my work performance. I was working full time until the day before that I went into the hosp for a stem cell trans. I was falling asleep at work on a regular basis, and I was nvr diagnosed until about 7 mos b4 my transplant. At that time I began taking a blood thinner, but no Soliris. I feel great after my transplant compared to how I was for prob almost 10 yrs. Good luck in your treatment.

Mario
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MARIO, 52, DIAG IN 2011 W/ PNH, MUD IN DEC 2011. MINI TRANS PSL DENVER/ SOME MILD GVHD. CURRENTLY TAKING JAKAFI FOR GVHD.
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