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Old Fri Jun 1, 2007, 08:05 PM
DaveT DaveT is offline
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Join Date: Jun 2007
Location: Umatilla, Oregon
Posts: 2
MDS pediatric cases

I'm new to the Forum. My 15-month old granddaughter was very recently diagnosed with MDS, Monosomy 7. I've done lots of research and made lots of contacts with pediatric centers in the last couple of weeks. Locally (Northwest) I'd say we're a bit frustrated; but, really feel her best chances might lie with children's hospitals in Houston, Wisconsin, and Minnesota. Do any of you have children or grandchildren with this condition and can you offer any advice. We are still overwhelmed as you might imagine, and I'm planning in attending the conference in Las Vegas in mid-August. I'd really appreciate your thoughts.
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