View Single Post
  #19  
Old Wed Jan 11, 2012, 10:30 PM
mausmish mausmish is offline
Member
 
Join Date: Mar 2010
Location: Maryland
Posts: 453
Brenda, Sorry about the terrible time you're having with the doctors there. I've been so fortunate in that respect. Even so, I traveled 3000 miles (combining the trip with a nice vacation) to get a second opinion at "The Hutch" in Seattle. Neil has given you excellent advice. MDS is a relatively rare disease with so many variations, and it is important to be diagnosed properly by experts and especially to feel confident and comfortable with your medical team. You deserve nothing less! Karen
__________________
Karen, age 62, dx MDS RAEB-2 1/8/10: pancytopenia WBC 2.7k/Hgb 7.4/Hct 22.1/Plt 19k; complex cytogenetics -3,del(5)(q14q33),-6,+8,+mar,17% blasts. MUD BMT Johns Hopkins 11/30/10. Dx tongue cancer 8/31/12. ok now. blog mausmarrow.com
Reply With Quote