Exjade side effects...
I've been taking Exjade for about five years and I have to keep a close eye on Creatinine because one of its side effects is to push up Creatinine levels beyond my "normal" level. When that happens, I stop for about three weeks and confirm the Creatinine level has come down. My doc and I came to an agreement that keeping the serum ferritin around 1000ug/L works OK for me. And I've had quite a few more transfusions than you.
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Ric: Low-risk MDS (blasts <4%); 4 cycles Revlimid no positive response; PRBC transfusion dependent; so far, 392'units' over 8 3/4 years; BMB #4 (15/04/01) shows evolution to AML (blasts 20-30% ) 47,XY,del(5) (q22q35),+21[24][cp24]/46,XY(1).
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