Thread: Nutritionist?
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Old Sun Sep 25, 2016, 09:29 AM
Marlene Marlene is offline
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Join Date: Oct 2006
Location: Springfield, VA
Posts: 1,406
Over the years, we've not found anyone who can address the disease directly. These blood disorders are very rare and the root cause will vary from person to person. There is only so much they can do. We have done a lot with diet and complementary medicine and like you said, there's not a magic bullet. We worked with a nutritionist early on to try and figure out what was low or deficient. That can be helpful to find out so you can correct things. But these days, you can pretty much find a lot out on your own. There are labs that provide blood, urine and stool test directly. You can find out if you have MTHR mutations too which can effect your body's ability to convert and use the B12 and folate.

I would consider looking for a doctor who specializes in functional or orthomolecular medicine instead of a nutritionist. But you need to be careful there too. Like in all medical professions, many will over test/treat and that can be bad too.

Is it only her red cells?
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Marlene, wife to John DX w/SAA April 2002, Stable partial remission; Treated with High Dose Cytoxan, Johns Hopkins, June 2002. Final phlebotomy 11/2016. As of July 2021 HGB 12.0, WBC 4.70/ANC 3.85, Plts 110K.
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