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Old Sat Jul 15, 2017, 06:51 PM
Neil Cuadra Neil Cuadra is offline
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Join Date: Jul 2006
Location: Los Angeles, California
Posts: 2,553
Quote:
Originally Posted by Warburg View Post
Are these forums active? I realize that bone-marrow diseases are rare, but I have myelofibrosis, and I'm surprised that there is so little discussion of it here. I did find one thread that dealt with a bone-marrow transplant, but that's all.
Marrowforums is primarily focused on aplastic anemia, MDS, PNH, and PRCA. Many of these patients are also dealing with myelofibrosis, which is why you find it mentioned in some of the discussions.

Here are two listservs that people with myelofibrosis might find useful:
MPDSUPPORT@LISTSERV.ICORS.ORG

MPN-NET@LISTSERV.ACOR.ORG
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