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Old Wed Aug 28, 2013, 08:46 PM
Chirley Chirley is offline
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Join Date: Oct 2007
Location: Logan City Australia
Posts: 1,100
Sounds like when my brother was 11years old. Same symptoms. He was treated for ITP with high dose steroids and he improved.

Over the years it would come and go. Then they developed a test for Lupus and it came back very very positive.

My brother has thrombocytopenia episodes, has prednisone, it improves, he's okay again for a while and around and around.

BTW, he turned 62 this year! He's happy and healthy and enjoys physical work on his hobby farm.

Hope things turn out ok.
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Copper deficiency bone marrow failure (MDS RAEB 1), neuromyelopathy.
FISH reported normal cytogenetics but gene testing showed
Xq 8.21 mutation
Xq19.36 mutation
Xq21.40. mutation
1p36. Mutation
15q11.2 deletion
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