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Old Sat Aug 10, 2019, 12:59 AM
Meri T. Meri T. is offline
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Join Date: Aug 2016
Location: Tokyo, Japan
Posts: 174
Blood counts doing well/tapering meds.

I thought I should add how my steroids are being tapered.

Prednisolone 3mg to 2mg.
Cyclosporine 3times a week to once a week
Stopped Itraconazole (for fungus)

In about a week, I will feel some withdrawal of the taper. Wish me luck.

Blood counts doing well:
WBC: 6.4
RBC: 3.90 (Hgb: 12.9)
Platelets: 190

I still have some slight GVHD skin and liver issues, but I feel like once I am in the GVHD zone, I have no fear of relapse .
Everyone, take care. Enjoy the summer.
Meri
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Female born 1965, diagnosed MDS RAEB1 in August 2016, watch and wait for 9 months. Sibling match - Stem cell transplant in 2017.
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