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Old Thu Jun 17, 2010, 12:36 AM
Chirley Chirley is offline
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Join Date: Oct 2007
Location: Logan City Australia
Posts: 1,100
Oh well, I tried to be positive. I just had my mid Vidaza cycle blood test yesterday. My Hb has dropped 25 in 8 days so even though it was 106 I still had to have a unit of blood today because at this rate it would have been 70 ish by the time my next Vidaza cycle was due.

WCC still 0.6
Neuts 0.09
Platelets 106

So not much change there. Once again told to be very careful with infections and now need to be on anti fungals prophylactically all the time.

There's still next cycle and the one after that etc. Hope springs eternal.


Stay well everybody.
__________________
Copper deficiency bone marrow failure (MDS RAEB 1), neuromyelopathy.
FISH reported normal cytogenetics but gene testing showed
Xq 8.21 mutation
Xq19.36 mutation
Xq21.40. mutation
1p36. Mutation
15q11.2 deletion
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