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Hi Paul,
You might want to consider going to MD Anderson in Houston. They are a center of excellence for MDS and see many MDS and AA patients each year.
One needs a doctor that has experience with these diseases or is willing to let
the experts help direct the treatments.
Keep a positive attitude, you are young and should respond well to treatments. There are several options that might fit your case.
__________________
Kirby71, RAEB2 dx 2/04, Thalidomide 30 mo, Revlimid 18 mo, No resp Vidaza
6/09 2nd Thalid use, Promacta, Lowdose Dacogen added 10/09 at 40% blasts. 5/11 BMB-blasts 8%.
2/11 2nd Revl restart=good resp, Platelets drop 6/11, 3rd Thalid,+Nplate+Dacogen. 7/12 Cnts stable for 10 mo.
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