Quote:
Originally Posted by Marlene
Hi Paul,
The one thing these diseases teach you is "patients". You spend a lot time waiting for things.
Marlene
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Ain't that the truth. I've been "hanging in there", it will be 3 years this coming February, since I have the very slow and I mean very slow progressing kind of MDS-RCMD. My counts drop approx. one or two tens with each CBC every four months.
Paul, I would ask you to be patient and not jump to any conclusions as this disease is ever changing and ever shifting and you have no idea where it will end up. You are young with a whole life ahead of you and they are constantly finding new treatments and medications, so be patient and get all the facts from your CBCs and BMB and then a course of action can be persued. We will hang in there with you and help you as you take this journey. You are not alone!