Thank you for the update Paul. It is interesting that so many of us understand exactly what you are experiencing at this time. It is hard to offer much more than you already know so hunker down and ride this out the best you can. I hope they caretakers can keep you comfortable and help you get as much sleep as possible.
age 70, dx RAEB-2 on 11-26-2013 w/11% blasts. 8 cycles Vidaza 3w/Revlimid. SCT 8/15/2014, relapsed@Day+210 (AML). Now(SCT-Day+1005). Prepping w/ 10 days Dacogen for DLI on 6/9/2017.