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Old Mon Nov 11, 2013, 11:10 PM
Kathy S Kathy S is offline
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Join Date: Nov 2013
Location: Leesburg, Fl
Posts: 72
Wink Kathy S

My husband was diagnosed with MDS in May. It is a whirlwind trying to get information and make the best possible decisions. We started in Buffalo, NY(summer home) and immediately came back to Florida area where our permanent home is (Leesburg,Fl). We first went right to MD Anderson in Orlando, but found out they do not do BMT there. At this time I did research and after getting as much information as possible we made an appointment at Moffitt Cancer Center in Tampa.
He has been on Vidaza since June 24, 2013. On Aug 28th,2013 we had wonderful news that he had gone into complete remission. His report today was the same. All of his blood counts are normal and I thank God for this too happen so quickly.
We have an appointment Dec.4th at Moffitt for another Bone Marrow Biopsy and to move forward for BMT after the first of the year and a donor can be found.
It is totally his decision to move forward with the transplant...I am scared and pray for the strength to be positive for his sake.
He had 2 blood transfusion in the first two months and a unit of platlets.
June ------------- ---- --------------- today
PLT------------ 32 ------------------------- 234
WBC----------- 1.9 ----------------------- 6.0
HGB----------- 8.1 ------------------------ 15.3

Last edited by Kathy S : Tue Nov 12, 2013 at 08:48 AM.
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