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Marlene, how many weeks of EPO did John take to see even the smallest response, if he was transfusion dependent at that time, did you see response through longer intervals or were you able to see a rise in HB? It must be many years ago for John, but would like to understand what the trend may be like.
Hope John is doing well, its nothing short of a miracle for the BM to start functioning again.
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Mother age 79, dx MDS RCMD low risk del 20q April 2013, no response to EPO, Danazol. pRBC tx dependent - 2 units every 3-4 weeks, exjade Dec 2013 - Mar2014, restarted Dec 2014
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