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hi I am low grade myleodysplasia with a hemaglobin of 103, do you think the drs might do a drug therapy on me, I also have a separate hemorrageing permanent problem. this complaint cant be permanently fixed so between the two complaints I feel terrible I am currently asking the drs if i can have transfusions once a month to help me cope. The drs cant know which of the two things is responsible for the red cell drop I was diagnosed two years ago, with MDS and had a hemicolectomy 15months ago to remove the AVMs out of my bowel ,they for a reason known only to them left some in there and that is what could be bleeding again..i am in a real hard place...I live in country queensland and have no one I can talk to other than my doctor who is at a loss as to what to do....as well i only have one kidey so im concerned about the high doses of Prendisone..can any one help...please
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