[Hopeful]

Hi chic88,

The reason that I asked is that the pre-conditioning regimen for inherited forms of the disease is different from that of immune-mediated forms. When I met with my local transplant team, they said that they would have to refer me to another facility if I tested positive for the inherited forms.

So, it is very important to rule out the inherited forms of the disease before transplant - especially with a sibling donor.

It is possible for someone to have an inherited form of AA, even if their parents showed no signs of the disease, if both parents were carriers. It is usually auto-recessive.

Hopefully, this is not the issue with your boyfriend, but it is worth talking to his doctor's about the possibility.

You may want to check out Dana-Farber, if you are in the NYC area and are looking for a second/third opinion. You should look for an AA specialist, not just a BMT specialist. Another option to consider is NIH in Maryland.

Stay strong and keep searching for answers!