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Old Fri Aug 13, 2010, 08:24 AM
Robi1Knobi Robi1Knobi is offline
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Join Date: Mar 2007
Location: Austin, Texas USA
Posts: 98
I have moderate AA and am 41 too!

Hi guys...guess we are all in this together....All I can offer is stop eating fast food, food with preservatives, drink more water (1/2 your body weight in ounces), avoid chemicals on your skin, sleep at night, eat more fruits, berries, and vegetables, and try to do things that make you happy ). I'm not a transplant candidate, so these are things I've been doing to keep from getting worse. So far, I have needed 2 blood transfusions (last one in May), and don't want any more! best of luck to ya'll, and hope ya'll find some answers too. Hugs
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Linda, 47 yo, married, mother of a teen, moderate AA w/ TERC mutation (2007 NIH), Pulmonary Fibrosis 2010, was on Danazol study (Aug 2011-2013 & restarted 9/14/15), last transfusion May 2011. On Promacta now. Needing a double lung and stem cell transplant.
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